Because we are going out of town on Friday, my husband’s home helper is being scheduled for extra hours this week. I usually schedule his appointments, or our outings, on days when Miklos doesn’t have help. We have taken our caregiver to one appointment. Tomorrow, we will take her to a social event. It will be the first time many of our friends will have known that we have care. Some may not know that Miklos has dementia. I am not sure what response we will have to bringing Kat to our luncheon tomorrow.
While our caregiver was here on Friday, I had lunch with a friend whom I hadn’t seen for a few years. She was shocked and saddened to hear that Miklos has dementia. And like many of my other friends, she especially decried the fact that this cruel disease should be affecting such a brilliant man. She has been in mourning for her father and stepfather, who died within three months of each other, and now she is mourning with me. She understands very well that my mourning process has already begun. She talked about how I am losing the man that made my heart go pitapat.
I have heard some people say, “Why is it always the best minds that develop this disease.” But that is not actually the case. Dementia is more common in people with less education. Miklos’ brilliant mind may be one of the factors in slowing the degeneration. That was certainly one of the factors our neuropsychologist cited when giving us the hopeful prognosis that his decline would be gradual.
It may be that we all mourn a bit more for the brilliant and creative minds that fall prey to dementia, and so we become more cognizant of them. I am sure that many of my generation remember visits to nursing homes with the smell of urine and bleach, and folk, mostly women, wandering in the halls in hospital gowns.
Care may be better now. I really don’t know. I haven’t visited such a home since my Aunt Madge died in 2004, and the facilities she was in were far superior to those I remember from my childhood, and even those my Camp Fire girls visited as part of their community service in the 1980s.